Online resources currently available:

English:

The Tuberous Sclerosis Alliance (US)
www.tsalliance.org

The Tuberous Sclerosis Association (UK)
www.tuberous-sclerosis.org

Chinese:

Taiwan Tuberous Sclerosis (Taiwan)
www.ttsc.org.tw

French:

Association sclérose tubéreuse de Bourneville
www.astb.asso.fr